Research areas
Intellectual Disability
Fetal Alcohol Spectrum Disorder (FASD)
Rare Diseases
Movement Disorders
Family & Community
Measurement & Resources
Rett syndrome and related disorders
Measuring quality of life
Team
Reports and Findings
Fetal alcohol spectrum disorder and Aboriginal and Torres Strait Islander men: A discussion to be had
Fetal alcohol spectrum disorder (FASD) is a lifelong disability of varying severity that occurs among individuals prenatally exposed to alcohol. Among Aboriginal and Torres Strait Islander (Indigenous) Australians, the effects of colonisation and ongoing racism could increase the risk of alcohol consumption during pregnancy.
Fetal Alcohol Spectrum Disorder (FASD) Published research Aboriginal Health & Wellbeing Aboriginal Health Child Disability Maternal healthDown syndrome or Rett syndrome in the family: Parental reflections on sibling experience
Siblings of children with intellectual disability have unique family experiences, varying by type of disability.
Published research Aboriginal Health & Wellbeing Rett Syndrome Child Disability Child disabilityLong-term outcomes of symptomatic optic pathway glioma: 32-year experience at a single Western Australian tertiary pediatric oncology center
Optic pathway gliomas (OPGs) are associated with significant risk of visual and endocrine morbidity, but data on long-term outcomes in symptomatic patients is sparse. This study reviews the clinical course, disease progression, survival outcomes and long-term sequelae in pediatric patients with symptomatic OPGs in our institution over three decades.
Children's Cancers Published research Child Disability Brain Tumour ResearchSevere Congenital Heart Defects and Cerebral Palsy
To report the prevalence of cerebral palsy (CP) in children with severe congenital heart defects (sCHD) and the outcome/severity of the CP.
Cerebral Palsy Published research Child Disability Child disability