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The Intellectual Disability Exploring Answers (IDEA) database is one of the only population-based resources in the world dedicated to intellectual disability, with additional specific research projects on Down syndrome, Rett syndrome and the CDKL5 disorder.

Researchers are examining critical time periods and their relationship with intellectual disability, including pre-term birth and the transition from school to adulthood for young adults with an intellectual disability. Research on the transition period looks at their work, where they live, who provides cares, how health and therapy needs are managed and how the young adults spend their days.

One study has found that young people with Down syndrome experience fewer behaviour problems compared with those with intellectual disability of other causes. Nutrition and physical activity in children with Down syndrome is another area being explored.

Research has shown that children with an intellectual disability or autism are up to 10 times more likely to be admitted to hospital than children without intellectual disability or autism.

Another study has found that mothers of a child with autism or intellectual disability (but not Down syndrome) were more likely to have mental health problems after the child’s birth. This may relate to the amount of care needed by their child and suggests that support services could also have an important role in supporting the health of the mothers.

 

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CDKL5 on Ch7 news

Roisin Carbery suffers from a rare genetic disorder which causes her to have multiple seizures a day. Watch this story to learn what Telethon Kids Institute researchers are doing to help kids like Roisin.

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