Senior Research Officer
PhD
Marie Blackmore is a senior research officer in Child Disability and a member of the Wal Yan Respiratory Research Centre. She works with families of children with disability, clinicians, and other researchers to find ways of improving the quality of life of children with disability. She has conducted research on respiratory health in children with cerebral palsy, including developing a respiratory risk checklist for parents and guidelines for respiratory management in cerebral palsy. She is also currently working with research teams to measure health-related quality of life in children with disability, to identify pain in children who cannot self-report it, and to provide evidence-based information for families of children with Prader-Willi syndrome. She holds a PhD from The University of Western Australia.
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Publications
March 2024
Psychometric Properties of the EQ-5D-Y-5L for Children With Intellectual Disability
The EQ-5D-Y-5L is a generic preference-based measure of health-related quality of life for children. This study aimed to describe the distributional properties, test-retest reliability, and convergent validity of the EQ-5D-Y-5L in children with intellectual disability (ID).
Published research Child Disability Early Neurodevelopment and Mental Health Child disabilityFebruary 2024Can RESPiratory hospital Admissions in children with cerebral palsy be reduced? A feasibility randomised Controlled Trial pilot study protocol (RESP-ACT)
The most common cause of morbidity and mortality in children with severe cerebral palsy (CP) is respiratory disease. BREATHE-CP (Better REspiratory and Airway Treatment and HEalth in Cerebral Palsy) is a multidisciplinary research team who have conducted research on the risk factors associated with CP respiratory disease, a systematic review on management and a Delphi study on the development of a consensus for the prevention and management of respiratory disease in CP.
Cerebral Palsy Published research Child Disability Child disability Kids Rehab Research WAJuly 2023The cost of respiratory hospitalizations in children with cerebral palsy
To establish the burden of respiratory illness in cerebral palsy (CP) on the Western Australian health care system by quantifying the costs of respiratory hospitalizations in children with CP, compared with non-respiratory hospitalizations.
Cerebral Palsy Published research Early Childhood Development Child Disability Children's Lung Health Child disability Kids Rehab Research WA -
Education and Qualifications
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Awards/Honours
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Active Collaborations