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Koolungar (Children) Moorditj (Strong) Healthy Skin
Investigators and research team
Investigators:
A/Prof Asha Bowen
Dr Bernadette Ricciardo
(Dr) Uncle Noel Nannup
Aunty Dale Tilbrook
Prof Jonathan Carapetis
Dr Richelle Douglas
A/Prof Brad Farrant
Dr Heather-Lynn Kessaris
Clin Prof Prasad Kumarasinghe
Dr Janessa Pickering
Dr Hannah Thomas
Ms Ellesha Gale
Research Team Members:
Ainslie Poore – Senior Project Officer
Jacinta Walton – Aboriginal Project Officer
Eloise Delaney – Research Assistant
Alexandra Whelan – Program Manager
Taleah Ugle – Student
Nadia Rind – Aboriginal Health Practitioner (DYHS)
Lorraine Hansen – Aboriginal Health Practitioner (DYHS)
Ellesha Gale – Aboriginal Health Practitioner (SWAMS)
Brenda Carter – Aboriginal Health Practitioner (SWAMS)
Project description
GUIDING PRINCIPLES: RESPECT, RECIPROCITY, CAPACITY BUILDING, COMMUNITY INVOLVEMENT
In partnership with Aboriginal Elders, Aboriginal community members, and Aboriginal Community Controlled Health Organisations (ACCHOS), the Koolungar (children) Moorditj (strong) Healthy Skin project is the first ever co-designed research-service Australian study to describe skin health in urban-living Aboriginal koolungar.
Healthy skin is important for overall health and well-being, however, up until recently only little was known about skin health in urban-living Aboriginal koolungar in Australia. Having identified this knowledge gap, the Healthy Skin team consulted extensively with a team of Aboriginal Elders on Noongar Boodjar (land/place) to discuss the interest, scope, and importance of an urban-specific healthy skin project. From here two Elders, Aunty Dale Tilbrook and Uncle Noel Nannup joined the research team as investigators and Elder researchers; providing strong cultural governance and oversight in the design and process of the project to align respectfully with Aboriginal values.
Prioritised by Aboriginal voices, the three main objectives of the project are:
1. To understand more about skin health in urban-living Aboriginal koolungar in WA, to inform dermatology services, treatment recommendations and educational resources.
2. To embed an evidence-based dermatology research-service program.
3. To develop and evaluate culturally appropriate moorditj healthy skin educational resources.
In partnership with urban ACCHOs, Derbarl Yerrigan Health Service (DYHS) on Whadjuk boodjar (Perth region) and the South West Aboriginal Medical Service (SWAMS) on Wardandi boodjar (Bunbury region), a research-service program was established, facilitating monthly paediatric dermatology clinics and three week-long community skin screening events in a culturally secure setting.
Two Community Advisory Groups (CAG) were formed, one representing Wardandi boodjar and one representing Whadjuk boodjar. Their role being to provide local leadership, direction, and cultural guidance on the project; and to lead development of culturally appropriate health promotion resources on moorditj healthy skin.
The results of this project have led to improved dermatology service provision, a suite of culturally appropriate health literacy and health promotion resources, and informed the second edition of the National Healthy Skin Guidelines to include urban-specific recommendations.
Partners
Derbarl Yerrigan Health Service (DYHS)
South West Aboriginal Medical Service (SWAMS)
Funders
This project is generously funded by: Wesfarmers Centre of Vaccines and Infectious Diseases Seed Funding and Capacity Building Grants, Channel 7 Telethon Trust Grant and Western Australian Future Health Research & Innovation Fund.
Dr Ricciardo is the recipient of an Australian Government Research Training Program Fees Offset and WCVID Top-up Scholarship. The Australian National Health and Medical Research Council provides PhD scholarship funding for Dr Ricciardo (GNT2014208), and Investigator Awards for A/Prof Bowen (GNT1175509) and Prof Carapetis (GNT1173874).
Products supporting skin health have been kindly donated by Cancer Council WA, City of Fremantle, City of Stirling, South West Sports Centre, Maali Mia Aboriginal Cultural Centre, Priceline Pharmacy, LaRoche Posay and Ego Pharmaceuticals.
Our Investigators
Asha Bowen
BA MBBS DCH FRACP PhD
Program Head, END RHD and Team Lead, Healthy Skin and ARF Prevention
Healthy Skin Resource Hub
The Healthy Skin team has worked alongside Elder Researchers and community members from across WA to bring together a suite of Healthy Skin resources that are both culturally and geographically appropriate. These resources include health promotion books that incorporate traditional language and medicine, music videos, clinical factsheets, and guidelines.