Project Manager, Australasian Diabetes Data Network
BSc GradDipComp MPH
Helen is a Project Manager for the Australasian Diabetes Data Network (ADDN). The ADDN project has established a central database pooling de-identified longitudinal diabetes data from a growing number of paediatric and adult centres across Australasia, enabling research into long-term health outcomes for children and adolescents who develop early-onset diabetes. Helen also works as a research and quality improvement coordinator within the clinical team at the Department of Diabetes and Endocrinology at PMH.
Her areas of research interest are:
- Epidemiology
- Genetic and environmental risk factors
- Clinical data collection and harmonisation
- Clinical care and associated outcomes in children with T1D
- Models of care for children newly diagnosed with T1D.
Helen has worked previously as an IT business analyst both in Western Australia and the UK.
- Projects
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Publications
December 2022
Diabetic Ketoacidosis at Onset of Type 1 Diabetes and Long-term HbA1c in 7,961 Children and Young Adults in the Australasian Diabetes Data Network
The relationship between diabetic ketoacidosis (DKA) at diagnosis of type 1 diabetes and long-term glycemic control varies between studies. We aimed, firstly, to characterize the association of DKA and its severity with long-term HbA1c in a large contemporary cohort, and secondly, to identify other independent determinants of long-term HbA1c.
Diabetes (Type 1) Published research Diabetes and Obesity Subsite: Wesfarmers Centre of Vaccines and Infectious DiseasesFebruary 2022Moderate and severe diabetic ketoacidosis at type 1 diabetes onset in children over two decades: A population-based study of prevalence and long-term glycemic outcomes
To investigate in a population-based pediatric cohort: prevalence of moderate-severe diabetic ketoacidosis at type 1 diabetes diagnosis over two decades and its association with long-term glycemic control.
Diabetes (Type 1) Published research Diabetes and ObesityOctober 2019Improvement in Psychosocial Outcomes in Children with Type 1 Diabetes and Their Parents Following Subsidy for Continuous Glucose Monitoring
Introduction of subsidized CGM showed early improvement in psychosocial and glycemic outcomes in patients and their families in Western Australia
Diabetes (Type 1) Published research Diabetes and ObesitySeptember 2019Decreasing Trends in Mean HbA1c Are Not Associated With Increasing Rates of Severe Hypoglycemia in Children
There have been concurrent improvements in HbA1c and decreasing severe hypoglycemia rates in two pediatric cohorts of type 1 diabetes
Diabetes (Type 1) Published research Diabetes and ObesitySeptember 2018Insulin Pump Therapy in Adolescents With Very Poor Glycemic Control During a 12-Month Cohort Trial
We conclude that insulin pump therapy can be an effective tool to improve glycemic control in adolescents with long-standing treatment resistance
Diabetes (Type 1) Published research Diabetes and ObesityNovember 2017Home-based vs inpatient education for children newly diagnosed with type 1 diabetes
With adequate support, children newly diagnosed with Type 1 Diabetes can be safely managed at home following practical skills training
Diabetes (Type 1) Published research Diabetes and ObesityAugust 2016Australasian Diabetes Data Network: Building a Collaborative Resource
A national collaboration was formed to provide longitudinal collection of T1D patient characteristics and outcomes, the Australasian Diabetes Data Network
Diabetes (Type 1) Published research Diabetes and Obesity -
Education and Qualifications