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Perth mother-of-four and Tiny Sparks WA co-founder Amber Bates is on the PELICAN Scientific Steering Committee with Dr Simpson. Ms Bates is a member of the Telethon Kids CONNECT program and has been a long-term community advisor on preterm research at the Institute.

“As a mother of a child who was born prematurely, it gives me both comfort and hope to know that the world’s best preterm respiratory researchers and doctors are working together to improve the outlook for our children,” Ms Bates said.

Dr Simpson said it was vital to have community members and those with lived experiences such as Ms Bates involved in research and projects such as PELICAN. 

“We’re doing this research for those kids born preterm and their families. We couldn’t do the work we do without their support and input,” she said. “This project is not just a collaboration with scientists and doctors across the globe, it’s also about involving consumers in the direction of research.”


Telethon Kids CONNECT honours the many ways our community supports us to make our research great and achieve our vision of happy healthy kids.

There’s a lot to be proud of and celebrate – our community plays an important role in what we do, how we do it, and what we achieve.